One of my favorite people will be running a half-marathon in Philadelphia on September 16th.
My daughter, Emily, along her very good friend, Wendy Levine, will run to raise funds for The Children’s Tumor Foundation—an organization whose mission is to end Neurofibromatosis (NF) through research. I don’t know about Wendy, but Emily’s never covered that kind of distance before. So it’s a huge commitment on her part—but a commitment to acting on behalf of something she truly believes in.
NF is a progressive and debilitating genetic disorder that causes tumors to grow randomly throughout the body, along the nerves and nerve endings. It can cause brain tumors, blindness, deafness, bone abnormalities, learning disabilities, and more. NF occurs in more than one in 3,000 births and is more common than Cystic Fibrosis, hereditary Muscular Dystrophy, and Huntington’s Disease combined. Currently, there are no effective treatments and NO CURE for NF.
If you’d like to support Emily and Wendy and their commitment to NF, click on over to Active Giving.com and make a donation.
Tell ’em Ski Diva sent you.